In my hours of need, I was robbed of my family, friends, beliefs and education. A mother’s narrative on her 14-year-old daughter's nine-month journey from ill health to death.

Article


Bara, D. 2017. In my hours of need, I was robbed of my family, friends, beliefs and education. A mother’s narrative on her 14-year-old daughter's nine-month journey from ill health to death. Illness, Crisis and Loss. 28 (2), pp. 158-174. https://doi.org/10.1177/1054137317706927
AuthorsBara, D.
Abstract

The study utilised a highly qualitative, narrative and free associative (Hollway and Jefferson, 2008) methodological approach to give a mother’s perspective of her teenage daughter’s 9-month journey from diagnosis of cancer to her death. Cancer is a unique chronic illness that impacts both physically and psychologically. The key findings of this study show that medical treatment alone is not enough and that professionals must understand the impact that cancer and the treatment has on the quality of life (QoL) for the child and how the phrase ‘surviving cancer’ has different meanings. It highlights the importance that family, friends, beliefs and education have on supporting a teenager and the consequences of denying that access to all stakeholders.

KeywordsCancer; children; adolescents; quality of life; hope; death
JournalIllness, Crisis and Loss
Journal citation28 (2), pp. 158-174
ISSN1054-1373
1552-6968
Year2017
PublisherSAGE Publications
Accepted author manuscript
Digital Object Identifier (DOI)https://doi.org/10.1177/1054137317706927
Web address (URL)https://doi.org/10.1177/1054137317706927
Publication dates
Print02 May 2017
Publication process dates
Deposited01 Mar 2017
Accepted27 Feb 2017
Copyright informationBara, D., In my hours of need, I was robbed of my family, friends, beliefs and education. A mother’s narrative on her 14-year-old daughter's nine-month journey from ill health to death. Illness, Crisis & Loss © The author. Reprinted by permission of SAGE Publications.
LicenseAll rights reserved
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The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond
Bara, D. 2018. The Hidden Cost of Cancer: The Siblings’ Story, A Mother’s Narrative on How Three of Her Children Journeyed Through Their 14-Year-Old Sister’s 9-Month Journey From Ill Heath to Death and Beyond. Illness, Crisis and Loss. 29 (1), pp. 19-36. https://doi.org/10.1177/1054137318755281